Archives For living with lupus

I am four weeks away from meeting my second child! It’s an amazing feeling knowing that we are so close, especially since this was a very long journey. With both of our boys we were not the lucky ones to conceive quickly. The first time around it took us seven months to get pregnant, while that is certainly not long compared to some people’s journeys it definitely is longer than we expected for being young and healthy. Little did we know that I had Lupus and it was playing a factor into me getting pregnant. This time around we were aware that it might take a while. But, I will say even though I thought it would take a while I did not expect it being a two-year wait.

Maternity_11I had weird symptoms for about four years off and on, but nothing that would tie anything together for the doctors to think, hmmm… maybe it’s Lupus. After my oldest was born I had a rough recovery and then around the time he was eight months old all the symptoms I had previously hit at once and more. By the time he was a year and a half I was diagnosed, finally. Truthfully, I was just glad to finally have a name, a thing, a reason for everything. I could finally know what I was working with. Getting any diagnosis is scary, especially one like Lupus since it is so mysterious and can attack any part of your body. It’s hard to predict and hard to treat. But, God gave me a peace from the beginning. My story is from Him, He has everything in control and Lupus is just part of my story and I have come to terms with that. He has plans for me!

Since I was young, one of the first things that the doctor asked was if I wanted to have anymore children. There was no question that I did, we had always talked about wanting to have a large family. But, it was going to have to wait… for the time being. Lupus patients can have safe pregnancies and healthy babies, but the best thing to do is first get it under control before putting your body through the stress of pregnancy. So that meant that I spent the next year working with the doctor to get everything controlled and to a point that I could get pregnant. That was hard, because by then in our ideal world we would have already been trying for another baby. Being told yes, but not right now is very trying…

After a year we finally got the okay from the doctor, everything looked good and we could try for our second child! Yay! And then came the next year… I honestly thought, oh it will take a while, but probably not longer than it took the last time. Well, it took exactly a year before we were pregnant. Since it was such a long wait I truthfully was in shock when I had a positive pregnancy test! You wait that long and eventually you start to think of it as a distant future thing, when it finally meets your present it’s so exciting you can’t believe it.

Fast forward a few months and I am sitting here, my oldest will be four next month and my youngest will be born within the next four weeks. It was definitely not the plan we had envisioned for our family, we had always pictured a two to three-year age gap. But, God has a much better, more beautiful plans than we can make for ourselves. Will we get to have four kids like we always imagined? I don’t know, and at first that saddened me. But now, I know that we will be given the number of children that God had planned for us from the beginning. If that means two, three or four it doesn’t matter, because whatever His plans are for me I am thankful! I am thankful to be called Mom and thankful for the two amazing little boys that God has blessed me with already.

“No Mom, it’s okay. I want to suck my thumb.” 

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The first Lego set he built all by himself

My child actually said this to me this morning when I asked him to take his thumb out of his mouth. I couldn’t help but crack up laughing. Of course son, I know you want to suck your thumb, that’s why you do it. I never expected him to answer me with that kind of response though! When did he become a tiny adult? I mean seriously, it feels like overnight he has gone from a baby in diapers to this grown up kid with opinions of his own!

Honestly, I love watching him grow! But, I’m not sure how ready I am for this growing up thing, and the day that he thinks he doesn’t need moms help anymore. It’s every parents struggle, you are thrilled to watch them grow, learn and begin to do things for themselves. But, inevitably they grow up and these years of playing legos for hours, helping tie their shoes and playing super heroes will be behind us and they will be young adults facing new sets of challenges, surprising me with their sense of humor and wisdom. I don’t think that there will ever be a season during this parenting journey where you aren’t surprised by the new things your kids have learned or by how quickly the time has gone. It’s just part of parenting.

Yes, I hate how quickly time goes. Yes, I would love to keep him small for just a little while longer. But, if I did that then I would miss out on the precious moments that come with each new age. I would have missed out on a morning of him cracking me up with his fun personality and sense of humor, seriously, he is hilarious! I think the best thing to remember is that our children will grow up, that’s just how life goes. But, there is so much joy to be had in ever stage of life. Just be in the moment and enjoy every minute of it!

 

A New Season Ahead

July 19, 2014 — Leave a comment

If you haven’t noticed, it’s been pretty quiet around my blog lately. I took about a 6 month break from pretty much all my writing. There was a lot going on and it just seemed like the thing that needed to happen, one less thing to think about in my day. But, only for a season, because I truly do love my writing time… and now I am back!

The Regal Ruby is our take on the classic Cherry Pie

The Regal Ruby is our take on the classic Cherry Pie

The last post that I wrote was about The Year of Pie. Well, many of you probably already know that I have started a company with one of my friends, Viva La Pies. This was all in the beginning stages when I took my writing break. I have wanted to own my own Pie and Coffee shop for about eight years now. It never failed that when we would visit family in a small town in east Texas, Chase and I would find ourselves in the local pie shop dreaming about my future shop. We had talked about the “someday” pie shop for so many years that when we began to get more serious about it, it was kind of surreal. Finally, Chase asked me, “if you didn’t try, would you regret it?” I had no question in my mind what the answer was, yes… I would always wonder what-if. And with that we had our answer. My business partner and I worked for several months perfecting our menu and getting it exactly how we wanted it. Then came time for the Kickstarter, because opening a pie shop can be rather pricey. We ran a month-long Kickstarter and unfortunately we were not funded. It was definitely a disappointment. But, that has not stopped us. And why should it? Right now, we are operating as a home bakery and are working towards our store front. God can see what is ahead, and for that I am thankful, because he knows the best time for this to happen. Not to mention, we have had a great receiving from our online followers once we started accepting pie orders as a home bakery.

Viva La Pies

Want some pie? Don’t worry, we have plenty!

 

Also during my writing break and in the middle of starting Viva La Pies, I found out that I was pregnant. This was a two-year long wait that we were very excited about! We were so ready to grow our family, and was starting to wonder if that was ever going to happen for us. Not to mention how my Lupus was going to respond. Thankfully Lupus has been so quiet, I can actually say that I don’t even realize I have it right now! Praise the Lord! Like I mentioned above, it was a disappointment when our Kickstarter was not funded, but it definitely made sense with what was going on within our own family, it would not have been easy to open up a store front while pregnant.

Now, I am home after two years of being in the workforce. Those two years taught me so much, and I am thankful for that time along with this new journey ahead. My days fill up fast as I have an amazing three-and-a-half year old who keeps me busy, a couple of days a week I work for one of Chase’s companies, along with marketing and baking pies for Viva, all while being pregnant. It’s busy, but I wouldn’t trade it for anything! I am thoroughly enjoying the blessing we were given that is allowing me to work from home right now.

Sometimes, our timeline looks a little different from God’s timeline, but He always knows what He is doing!

 

The following post is a guest article written by Ruby Andrew. Ruby Andrew lives in Bristol, UK and is an avid reader and blogger. Since her early years she’s had a passion for writing. Her articles have been published in leading UK newspapers. Her areas of interest are food, reviews (Book/Movie), Travel, Fashion, Lifestyle, Fitness and Health. She works as a guest blogger on her chosen areas of interest and currently writes on behalf of EHIC card. 

Say “Hello” to Ruby Andrew

Systemic lupus is called “the disease with a thousand faces” in light of the disease affecting almost any organ of the body, and the symptoms resembling that of many other diseases. A condition in which the body isn’t processing enough red platelets; manifestations can extend from throbbing joints, fever, joint pain, exhaustion, skin rashes, and frailty. Lupus is a life-long battle full of the ups and downs and the uncertainty of how the disease can affect your life as well as the life of your loved ones. Caring for loved ones who suffer from Lupus is the biggest challenge in the life of the caretaker, as they need to cope with the physical and emotional sufferings of their loved one.Here are the few tips on how to take the best care of your loved ones with Lupus and how to safeguard the health of yourself.

1. Learn About Lupus

Lupus is a ceaseless, immune system sickness that influences nearly 1.5 million Americans. As information is a powerful tool, knowing the information about Lupus helps you to take better care of your loved ones.

2. Learn Early Warning Signals Of Lupus

As one might expect, the cautioning signs vary for every individual. Signs can incorporate hair diminishing, expanded joint torment, expanded exhaustion, and raised body temperatures. Signs and symptoms will vary patient to patient.

 3. Give Them Emotional Support

Besides the physical symptoms, Lupus profoundly affects a person emotionally well as.

Now it’s the time for the caretakers to build positive support for the people who are suffering from lupus.

4.Educate About Nutritious Diet

Learn with your loved one the best diet for their illness.

5. Take a Break from Lupus

Ask your loved one how they are feeling. Both the caretaker and the patient need to take a break from Lupus and enjoy themselves.

It’s not simple having lupus and it’s not simple being a guardian of a friend or a family member with lupus, on the grounds that you must be prepared for anything at whatever time. There are many help and supportive networks accessible to patients and family of individuals with lupus.

 

As many of you know, my family no longer does Christmas cards. We make a Christmas video each year and I just love this tradition! It is something that we look forward to making every year.

Merry Christmas!