Archives For loves

The following is a guest post by Mandy Karo. I first met Mandy in college when we both joined Pi Zeta Phi during college. After hearing about my diagnosis Mandy reached out to me as she is also living with Lupus. I am so thrilled to have her share her story. She has wonderful insight, show her some love! 

Middle school is a tough time for most kids. When I was in eighth grade, I was in the midst of a very difficult transition with my two best friends. We had been inseparable in fifth, sixth, and seventh grade. I remember the gym teacher saying weMandy's guest post were “joined at the hip.” But in eighth grade, they were drifting away from me and becoming a part of the popular girls group. For a young teen this felt like the ultimate abandonment and rejection. I remember feeling a lot of loneliness, stress, and anger. It was in the middle of this drama that something much worse was piled on to make my teen years even harder. I was diagnosed with Lupus.

I had been having odd symptoms for a while. In sixth grade I started having strange stomach aches. The doctors thought I might have ulcers so I had to have a stomach x-ray. It was awful—the stuff you have to drink so they can x-ray you is disgusting! There were no ulcers found so life went on. In seventh grade I began feeling tired in the afternoons. But what happened in eighth grade was what led to my diagnosis. I started getting purple spots on my feet and ankles, especially when I was upset or stressed out. My feet and ankles would also swell up. At first we thought maybe I was allergic to the laundry detergent my mom used but switching it didn’t help. The worst time was when one of my teachers accidentally ran over my ankle with a TV cart. The purple spots showed up and I got so swollen I couldn’t walk on that foot. It hurt to put shoes on.

When we showed my family doctor the spots, she was perplexed so she looked up what it could be. She named off a number of possibilities and one of them was Lupus. I really had no idea what Lupus was, but I had heard the name before, and I knew it was some sort of serious disease. I started to cry. We were sent to Children’s Hospital in Denver to see a rheumatologist. They did blood work and the doctor asked me a few questions about my symptoms. Then just like that, he told me I had Lupus, gave me some packets about it, and prescribed medications for me to take. It felt odd that it was so quick. Even my parents continued on acting normal. Didn’t they know that I was just diagnosed with an awful, potentially life-threatening disease? Shouldn’t we all be crying or yelling or something? I know that they were just trying not to freak me out. Inside they were scared too.

I’ve been diagnosed with Lupus for thirteen years now. I deal with fatigue, unexplained fever, swollen joints or muscles, sensitivity to the sun, susceptibility to sickness, and the spots (which are called purpura and are caused by bleeding underneath the skin). The medication I take has helped me in controlling the flares. I know I am actually very lucky because many people with Lupus have much worse symptoms, and thankfully my symptoms are not life threatening.

There are a lot of questions that come with having Lupus. Will my symptoms get worse? Will I be able to have a healthy pregnancy? Will I have the energy for a full time job? Will I have the energy to raise children? Will the men I date be able to handle the fact that I have Lupus or will it make them want to head for the hills? The real question becomes, what do I do with all of these fears and anxieties?

When any sort of fear comes into our lives, no matter what it is, we must remember the power of God. God is bigger and stronger than any scary thing that looms in our path. Just imagine the universe in its incredible vastness and remember that God created it! That is power. Then remember that he loves you. When something bad happens in life, we might be tempted to ask if God loves us. If God loves me, why did he allow me to get a disease? But that question is focused on the physical, and God focuses on the spiritual. Yes, bad things happen on this earth. But God allowed his son to die for us in order that we might have a new life. That is love. This world is temporary, and we must use the struggles that come with it to strengthen our relationship with God.

Top 10: Favorite Food

February 13, 2012 — Leave a comment
I heard so many stories of children who were either picky eaters or never wanted to eat their vegetables. I am so thankful that my little one not only loves his veggies but he actually enjoys them more than fruit! Parenting has no road map and every child is different so you never know what kind of eater you will get. Here is my top 10 list of foods that I never thought my child would love but does!
  1. Avocado 
  2. Squash
  3. Mushrooms
  4. Almond milk
  5. Cauliflower
  6. Kale
  7. Prune juice
  8. Peas
  9. Broccoli
  10. Bell pepper

What food does your child love that you never thought they would?

Photo Credit: Naotake Murayama

February 14, Valentine’s Day,  a day set aside for love. This is a day we are supposed to celebrate and be with the ones we love. Your day today could be spectacular. You may receive a gift that was completely unexpected or your day could be just like any other. Perhaps you have decided with your loved ones not to go all out this year celebrating the holiday. No matter the case though the point of the day is love. When the day ends it will not matter how you’ve chosen to celebrate this holiday because one things rings true, Christ’s love for you. His love will never change for us, it is a constant that we can always be sure of. If todays holiday festivities were more than you could have hoped for or if they were less than that you are still loved by Christ truly, unconditionally and forever. We were given the most amazing gift of all by the one that loves us most, eternal life. What a true gift this is. As we go through this day we will take the time to tell our families how much they mean to us. Stop and think about just how much Christ loves you and how much you mean to Him! When we set aside time today to be with those we love most make sure that there is time set aside in your day to be with the one who loves you most!

“For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life.” John 3:16 (NIV)

“Give thanks to the God of heaven. His love endures forever.” Psalm 136:26 (NIV)